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ALD Life
ALD Life aims to help all affected by or interested in adrenoleukodystrophy and adrenomyeloneuropathy,
whether personally or medically. We will try and help you to become aware, learn and discuss the many implications
of this devastating disorder.
Official Site: www.aldlife.org
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The British Trust for the Myelin Project
The Myelin Project is an international non-profit charity, which funds research to find treatments/cures for demyelinating diseases.
We rely solely on donations and fund raising, which mainly comes from families and friends who have a loved one affected by
a demyelinating disorder. These include Multiple Sclerosis (MS) and Leukodystrophies.
Official Site: www.myelinproject.co.uk
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United Leukodystrophy Foundation
The United Leukodystrophy Foundation is dedicated to helping children and adults who have Leukodystrophy and assisting the family
members, professionals and support services that serve them. The ULF is committed to the identification, treatment and cure of all
leukodystrophies through programs of education, advocacy, research and service.
Official Site: www.ulf.org
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The Adrenoleukodystrophy Foundation
One of the essential aspects of the foundations goals is to raise awareness of both ALD and AMN.
Official Site: www.aldfoundation.org
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The Stop ALD Foundation
Advancing research is the goal of the Stop ALD Foundation. Like a venture capital firm, we identify gaps in the
development process, seek out creative solutions to fill those gaps, and deliver the resources that can develop
these great ideas into concrete projects, and projects into therapies that can transform the lives of children with
ALD and their families.
Official Site: www.stopald.org
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Fight ALD
We aim to take away the mystery of ALD and replace it with knowledge and understanding of this devastating disease
that is affecting our families.
Official Site: www.fightald.org
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ALD Lebanon
We hope through this website to draw attention and highlight a very sensitive disease that is still unknown to the majority of Lebanese people.
Official Site: www.ald-leb.com
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Australian Leukodystrophy Support Group Inc.
Our mission is to provide assistance and information to those affected by Leukodystrophy and support
research into Leukodystrophy.
Official Site: www.alds.org.au
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The Myelin Project of Canada
The Myelin Project is an international grassroots organization whose mission is to accelerate medical
research on myelin repair.
Official Site: www.myelinprojectcanada.ca
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BVL, Germany
We bring researchers, physicians and patients together, and support research (in German).
Official Site: www.bvlev.de
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Myelin Project, Germany
The Myelin Project is an international grassroots organization whose mission is to accelerate medical research on myelin repair (in German).
Official Site: www.myelin.de
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