Smith Family - Leicester
Nicola and Scott have three boys, Connor Callum and Jack
Callum diagnosed early this year. No cure or treatment available.
Imagine your once healthy little boy slipping away little by little.
Callum now struggles to walk, see and talk. Then to be told Connor & Jack had the gene to.
Connor has changes on his scan that are quite advanced.
Connor who has just celebrated his 9th birthday went into Bristol Hospital on Monday
18th September to start treatment for a Bone Marrow Transplant. I have spoken with
Nicola and Scott who would like us to follow and keep you all in touch on how Connor is doing.
Jack had an MRI scan and this was clear. He will have scans every six months.
Our thoughts are with Nicola, Scott, Connor, Callum and Jack, all their family and friends.
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