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Learn more about Adrenoleukodystrophy (ALD) using medical articles and stories from people affected by the disease
Stories
Ollie Liley (By Sarah Gillbard, August 06)
In July 2006 Ollie Liley died aged 14, after a three year struggle with the debilitating illness, Adrenoleukodystrophy, known as ALD.

Ollie Liley was locally known for many years, as an up and coming rider with potential. More recently it was because of his illness. He was born In Nottinghamshire. Father, Mark Liley, is a Yorkshire man, who came from near Huddersfield and his mother, Gail Liley, came from Pickworth, in Lincolnshire. Ollie has a brother, Sam, who is 17. Family life functioned as normal until 2003.
Up until this time Ollie had achieved so much in his young life. Sam took up riding, which got the family into riding, followed by Ollie. He took up riding at seven years old, had lessons at the local riding stables, Dovecote Farm, in Orston and joined the local South Notts Pony Club. His interests were particularly in "The Prince Philip Cup Games” and show-jumping. His first pony was called "Tickle”; a chestnut Welsh gelding.

Ollie on 'Get Ready Freddie'