learn
28th May 2009 | 16:25
Learn more about Adrenoleukodystrophy (ALD) and its symptoms
Adrenoleukodystrophy is a rare terminal illness which is usually only detected when a young boy shows symptoms of the illness, by which time it is too late to try and save his life. Ironically it is when ones brother becomes ill that it is possible to test other males, and if they do not show signs they can be checked and monitored, and if signs of ALD are developing it is possible to halt the disease by carrying out bone marrow transplantation.

Symptoms of ALD are, but not limited to:
Declining schoolwork
  - Check handwriting
  - Child becomes bored
Loss of vision
  - moves head rather than using peripheral vision
Poor speech declining until lost
Seizures
Loss of hearing
Dementia
Loss of mobility and use of limbs

Questions you may want to ask as a parent if your child is diagnosed with this cruel disease

Where does it come from?
Females carry the gene but rarely get any symptoms.
Mothers can pass this to a daughter or son.
Fathers who carry the gene can not give this to a son only a daughter.
To find where the gene comes from there are blood tests that can be carried out.
It is advisable to get your family members checked.
Example: Boy diagnosed – brother and sister checked. If boys mother has brothers and sisters they should be checked and if they also have the gene their children too.
Ali Ratcliffe | ian bliss | ANNE MARKS | JOHN GREGORY | Aimi Liley | david miller | Ben Robinson | Amber Stafford | Annabel Haigh | Abigail Parker | Robert Harding | alison davis | danielle willett | gemma woods | Nikki Carr | Ian Brown | Gary Billiald | claire pearson | Jack Barclay | Jo Barclay | CHERRY YASSIN | Chloe Barclay | Jasmine Wilkinson | steven grimmett | helen liley | Lydia Honey | Debbie Clifford | nicola billiald | Ainslie sullivan | Sabeena Gill | Paul Barclay | CHERRY GOODSON | beth attewell | Robert Clarke | jayne pownall | Luke Day | Stephen Mayes | Tom Mawhood | Mark Liley | sophie probert | julie stubbings | Dave Brown | Tracey Hamilton | Suzanne Bradley | Eileen Lithgow | jayne keeley | Laila Dannourah | Sean Wiggins | Gail Liley | Stephanie Hemingway | Becky hempstead | Rosie Gunn | Rajan Gill | james pickering | Nikki Stevenson | Jess Robinson | francesca ritchie | MARK PARGIN | Lesley Belcher | James Liley | nicola carman | Paul Yassin | sandra Mullin | Cara Elliott | beth appleton | Aimi Liley | lee attewell | jade davis | Angharad Bowden | claire Bailry | joshua stubbing | Shirley Oates | Tony Lithgow | Angela Alonso | Sophie Oates | victoria toomey | amber sullivan | claudia rees | katie addyman | ellie may pownall | thomas radford | rachel dodds | JOSH PARGIN | Angharad Bowden | mark liley | valerie black | jamie barlow | Gillian Pear | Megan Mansfield | sharon griffin | Stephen Mason | craig hamilton | Jane Manchester | DANIEL PARGIN | lee redshaw | Stuart Green | lisa radford | Stacey White | Tracy Isaac | Ben Thompson | Sophie Wale | Laura Keeley | joss williams | Sharron Lithgow | nicola smith | helen sullivan | Bronwen Downing | GUY GREGORY | katie pownall | rebecca mcdonald | Julie Brown | Jane Bethea | stephanie stahlhut | jonathan redshaw | Sam Liley | Gwen Benintende | tom willett | deborah mansfield | Guy Gregory | charlotte carr | Sharon Liley | alice redshaw | Laila Dannourah | julie redshaw | Hannah Symmonds | John Dainton | Matthew Hannah | amy pownall | Hazel Walker | Julia Barnitt | Daniel Wale | chadd pearson | GEORGIE GREGORY | Chris Sadler | martie ronquillo | SUSAN GREGORY | Caroline Wagg | jean liley | ANDREW COCKAYNE | Laura Simpson | chris gregson | Will Gunn | michelle hamilton | harry willett | Anne Walker | Lara Newton | Sue North | Emma Liley | charlotte hannant | Katy Robinson | nicole and julia roomates | Pauleen Johnson | DEBORAH PARGIN | Michael Sadler | Emill Williams | Ellis Belcher | Thomas Goodson | sidonie emerson-quorn | Hannah Tongue | karen rees | vicky greenhough-knight | David Bowden | Gillian Pear | johnny pownall | laura elner | amelia green | regan willett | ben radford | Peter Liley | Gill Ruane | georgina allen | russell davis | PATRICK MC DONALD | Lynne Powell | Keith Goodson | Diane Keeling | Robyn Black | Karen Green | ian bliss | sophie green | tony hoole | Terry McCartney | sarah mousley | Joan Redshaw |
£755,964.57