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News
28th May 2009
Our Aim
Our aim is to find a cure for
ald
and
amn
.
If you want to help please support charities who have similar interests.
ELA
Myelin Project
25th November 2009
Gene Therapy
The Times have written an article for their science section highlighting the gene therapy treatment that could cure adrenoleukodystrophy.
Please take the time out to read this article at the link below.
The Times article on gene therapy
28th October 2009
New Investment
We are pleased to announce a significant investment to find a treatment for
amn
.
The Myelin Project & Olivers Army are funding $300k for a two year project at the Max Planck Institute to be carried out by Celia Kassman.
In addition, Olivers Army are funding $300k at the Institut d'Investigació Biomèdica de Bellvitge, to be carried out by Aurora Pujol and Nathalie Cartier in Paris.
Our aim is to be at clinical trials within 2 years.
If you are a female of male carrier, or currently have amn symptoms, I hope you will contribute to these projects.
From left to right: Prof. Klaus-Armin Nave, Torben Ruhwedel, Jennifer Barth, Sarah Richert, Dr. Wiebke Moebius, Dr. Celia Kassmann, Dr. Benoit Barrette, Susanne Quintes, Ruth Stassart, Annette Fahrenholz
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Forum
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Current topics being discussed
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Charity Events
Wednesday, March 10, 2010
tom willett | georgina allen | sharon griffin | amber sullivan | Nikki Stevenson | Thomas Goodson | jade davis | ANDREW COCKAYNE | katie addyman | claudia rees | regan willett | karen rees | Luke Day | Lesley Belcher | GUY GREGORY | Jasmine Wilkinson | Becky hempstead | Sharron Lithgow | Peter Liley | rebecca mcdonald | nicola smith | JOSH PARGIN | Emill Williams | Katy Robinson | claire pearson | Karen Green | Gary Billiald | Eileen Lithgow | Laura Simpson | johnny pownall | Robyn Black | Nikki Carr | ben radford | jonathan redshaw | Guy Gregory | joss williams | CHERRY YASSIN | Gail Liley | Jane Bethea | Angela Alonso | Lynne Powell | DEBORAH PARGIN | Ellis Belcher | laura elner | Cara Elliott | beth appleton | Bronwen Downing | michelle hamilton | nicola carman | Jack Barclay | vicky greenhough-knight | chadd pearson | Stuart Green | Anne Walker | gemma woods | ian bliss | Aimi Liley | Stephanie Hemingway | Julie Brown | Robert Clarke | Gillian Pear | Rajan Gill | Sam Liley | Robert Harding | Chris Sadler | ellie may pownall | rachel dodds | Laila Dannourah | Sabeena Gill | sophie probert | ANNE MARKS | Pauleen Johnson | charlotte hannant | Sharon Liley | jayne keeley | nicole and julia roomates | PATRICK MC DONALD | thomas radford | joshua stubbing | Hannah Symmonds | Keith Goodson | Stephen Mayes | lee redshaw | Mark Liley | GEORGIE GREGORY | Gillian Pear | Jo Barclay | David Bowden | nicola billiald | francesca ritchie | Emma Liley | lisa radford | Stephen Mason | Ben Thompson | Abigail Parker | Tracey Hamilton | deborah mansfield | Sophie Oates | SUSAN GREGORY | Gill Ruane | Will Gunn | Michael Sadler | alice redshaw | ian bliss | Amber Stafford | helen liley | helen sullivan | danielle willett | james pickering | Lara Newton | John Dainton | katie pownall | Debbie Clifford | CHERRY GOODSON | Tom Mawhood | amelia green | DANIEL PARGIN | JOHN GREGORY | Annabel Haigh | Laila Dannourah | charlotte carr | Ali Ratcliffe | sandra Mullin | sidonie emerson-quorn | claire Bailry | Julia Barnitt | Sue North | Sophie Wale | jamie barlow | steven grimmett | martie ronquillo | Tony Lithgow | julie redshaw | Stacey White | alison davis | Sean Wiggins | sarah mousley | craig hamilton | Matthew Hannah | Daniel Wale | sophie green | Ainslie sullivan | Hannah Tongue | jean liley | chris gregson | Megan Mansfield | beth attewell | Paul Barclay | Rosie Gunn | Ian Brown | victoria toomey | julie stubbings | amy pownall | mark liley | david miller | Aimi Liley | Dave Brown | Caroline Wagg | Jane Manchester | russell davis | James Liley | Joan Redshaw | jayne pownall | tony hoole | valerie black | Diane Keeling | Angharad Bowden | Paul Yassin | Terry McCartney | Laura Keeley | Lydia Honey | Chloe Barclay | Ben Robinson | Hazel Walker | harry willett | Shirley Oates | MARK PARGIN | Suzanne Bradley | lee attewell | Tracy Isaac | Angharad Bowden |
£
370,297.88