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Adrenoleukodystrophy - We work to increase knowledge, awareness and provide funding for research into treatment and prevention of ALD
News
18th March 2010
Genetix Secures Funding
Genetix Pharmaceuticals, a leading gene therapy company developing breakthrough treatments for severe genetic disorders, has announced that it has completed a $35 million Series B financing with new investors Third Rock....
Read more....
25th November 2009
Gene Therapy
The Times have written an article for their science section highlighting the gene therapy treatment that could cure adrenoleukodystrophy.
Please take the time out to read this article at the link below.
The Times article on gene therapy
28th October 2009
New Investment
We are pleased to announce a significant investment to find a treatment for amn.

The Myelin Project & Olivers Army are funding $300k for a two year project at the Max Planck Institute to be carried out by Celia Kassman.

In addition, Olivers Army are funding $300k at the Institut d'Investigació Biomèdica de Bellvitge, to be carried out by Aurora Pujol and Nathalie Cartier in Paris.

Our aim is to be at clinical trials within 2 years.
If you are a female of male carrier, or currently have amn symptoms, I hope you will contribute to these projects.
The Max-Planck Institute
From left to right: Prof. Klaus-Armin Nave, Torben Ruhwedel, Jennifer Barth, Sarah Richert, Dr. Wiebke Moebius, Dr. Celia Kassmann, Dr. Benoit Barrette, Susanne Quintes, Ruth Stassart, Annette Fahrenholz
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Charity Events
 
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£614,215.52