Adrenoleukodystrophy - We work to increase knowledge, awareness and provide funding for research into treatment and prevention of ALD
News
18th March 2010
Genetix Secures Funding
Genetix Pharmaceuticals, a leading gene therapy company developing breakthrough treatments for severe genetic disorders, has announced that it has completed a $35 million Series B financing with new investors Third Rock....
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25th November 2009
Gene Therapy
The Times have written an article for their science section highlighting the gene therapy treatment that could cure adrenoleukodystrophy.
Please take the time out to read this article at the link below.
The Times article on gene therapy
1st European AMN Board Meeting January 2013
AMN has largely been put on the back burner, with research and what little funding going to ALD.
In 2009, Olivers Army co-funded a project with the Myelin Project to research into and try and find a therapy for AMN. In 2009, Olivers Army also funded a second 2 year project which led to a clinical trial. In 2012/14 we are funding a third collaboration between Aurora Pujol and Troy Lund.
I would like to thank my friend Patrick Aubourg for organising and bringing together twenty of Europes Luekodystrophy scientists for the first round table meeting to look at the best way forward to find a treatment and cure for AMN.
We would like to thank all atending for your continued dedication & a final thank you to E.L.A.
The Max-Planck Institute
From left to right: Prof. Klaus-Armin Nave, Torben Ruhwedel, Jennifer Barth, Sarah Richert, Dr. Wiebke Moebius, Dr. Celia Kassmann, Dr. Benoit Barrette, Susanne Quintes, Ruth Stassart, Annette Fahrenholz
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